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40 Years of Advances in Hematology by Karyn Brundige Many of us are aware that the outcomes for children with cancer have improved significantly in the past 40 years, not just in overall survival but in decreased toxicity due to the evolution of targeted and tailored therapies. But what about children with hematology disorders, whether acute or chronic, benign or even life-threatening conditions? Im amazed at the treatment options available for my hematology patients today that didnt exist 25 years ago when I started as a new graduate nurse. Take a quick journey with me to celebrate some of the advances! Did you know that in the 1970s the average ...
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The Journey of Pediatric Hematology Oncology Nursing Certification: From Inception to Current Reality by Casey Hooke, PhD, APRN, PCNS, CPON(r) & Karla Wilson, RN MSN FNPC CPON(r) There are approximately 2000 certified pediatric hematology oncology nurses (CPHON(r)) and 1000 certified oncology nurses (CPON(r)) with 1629 (983 CPHON(r) and 646 CPON(r)) of those certified being current APHON members. So the question arises, "How did we get to having pediatric hematology oncology nurses certified in our profession, and why did we want certification?" From Casey: "The process for establishing certification for pediatric oncology (and now hematology) ...
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Evolution of advanced practice roles over the past 40 years by Deborah Lafond I guess you could say that my claim to fame is being the first pediatric oncology nurse in the United States Air Force. As a relatively new nurse, only a few years out of nursing school, I joined the Air Force to see the world and experience a different kind of nursing. Well, that wish surely came true. In those days, the Air Force could assign you a host of responsibilities that a typical bedside RN did not necessarily have the training to do. However, I worked with a dedicated pediatric oncologist who sent me to UCSF to train under the very capable supervision of Robin Kramer. ...
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The Evolution of Decision-Making and Consent/Assent during APHON's 40 Years by Kimberly Pyke-Grimm & Kathy Kelly Kim: It was in the early 90s when I first began to work with my mentor Dr. Lesley Degner, PhD , RN, in Winnipeg, Manitoba (Canada) to study treatment decision-making (TDM) in pediatric oncology. Dr. Degner had conducted decision-making research for many years in adult oncology. Through her mentorship we conducted a study where we applied her control preferences construct to pediatric oncology. Little did I know decision-making would become my lifes work! I met Kathy Patterson Kelly at a Childrens Cancer Group (CCG)* meeting when I was giving ...
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APHON: 40 Years of Nursing Education by Susie Burke Nursing education always has been and remains a key component of APHONs mission, beginning in the 1970s with informal gatherings of a few nurses who met to share their experiential knowledge and discuss ways to standardize care. This deep tradition of collaboration for education has carried forth to our current discussions as we gather together at conferences, during conference calls, through committee work, and at the bedside to outline what hematology/oncology nursing care looks like today. One of the highlights of my educational calendar is the Annual Conference, and I know this is something that ...
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APHON Count's Growth and Development: 40 Years Later by Kaye Scmidt APHON Counts has come a long way in 40 years! When I was asked to write this blog, I thought that although I am the current editor, I am not old enough to know the 40-year history of APHON Counts ! But then I started digging (with the help of the national office and some fellow APHON colleagues), and sadly, I was the one that came up with copies of the oldest APON counts that any of us could find! The oldest copy I found was from January 1994, and it was listed as Volume 8, Number 1. That would suggest that APON Counts may have originated in 1987! It also suggests ...
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Reflections about JOPONs evolution by Kristin Stegenga APHONs 40 th anniversary has given me the opportunity to reflect and share a bit with my fellow members about how the Journal of Pediatric Oncology Nursing came to be. Ours is a pretty young specialty. It wasnt until the early 80s that Dianne Fochtman bravely stepped up as our founding editor. That wasnt so very long ago and yet, all of the correspondence for the journal occurred via mail (the kind you send in the mailbox). So you, as an author, would mail your manuscript to Dianne. She would read it and then send it out for review (another mailing) and then the reviewers would mail it back ...
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The APHON International Task Force began working informally in the mid-2000s. Initial members were Jill E. Brace O'Neill, Ayda Nambayan, Christina Baggott, Beth Sievers, Mary Yeaney, Sharon McNeil and Cheryl Claeys, and Joetta Wallace . Newer members include Jami Gattuso, Linda Abramovitz and Courtney Sullivan. In 2004, the Task Force conducted a national survey of APHON members and 75% stated they would like a breakout session at the annual conference on international pediatric oncology nursing. In 2005, two Central American nurses were supported by outside funders to attend the APHON conference. America Galindo from Guatemala City, Guatemala presented her ...
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40 years of APHON Conferences by Melody Watral As we approach this remarkable milestone in our organizations history, I was asked to think back on the first time I attended an APHON Conference and what has kept me coming back for so many years. Reviewing the APON/APHON Conference list, it appears that I have managed to attend for 19 of the last 25 years. Guess that makes me a regular. Here are some of my reflections back on several of the APHON Conferences Ive attended: Boston, 1991 My first APON Conference. I traveled with several of the other nurses I worked with at that time to see what the APON Conference was all about. Strong memories ...
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APHONs legislative advocacy by Jami Gattuso Happy 40 th Birthday APHON!! Its amazing to me to think about how much change and growth we have seen in our organization over the decades.and it pleases me to think what changes we have to look forward to in the future! One area that has seen a tremendous amount of change is in the area of legislative advocacy. APHON currently has a truly solid strategic foundation and framework for legislative advocacy, but this has been a long time coming. A number of people have been pioneers along the wayslogging it out in the trenches alone. Those wonderful people are the workers I want to applaud. They are the ...
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APHON's Growth & Development by Casey Hooke I have a fascination with the wonder of growth and development. I think it is vital as pediatric hematology/oncology nurses that we are attuned to the developmental work that needs to be accomplished in childhood, whether the child has cancer or a blood disorder or is healthy. As I tell anyone who will listen: there are no “time outs” in development – so we need to support children in being successful in the work of childhood if we want them to become healthy adults. Thinking about APHON’s 40 th birthday, I considered some of the developmental theorists to see how our “age” fits with theory. According ...
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The Story of the Purple Book by Gen Foley, Dianne Fochtman, Katherine Kelly, and Christina Baggott Gen: I write this blog as one of two editors who have guided, and written for, all four editions of THE BOOK. Only Dianne Fochtman and I experienced editions one and two, so that time frame is my blog focus. The Board decision to develop a textbook was bold, ambitious, and a leap of faith. In theory, the idea should never have worked. In the 1970's there were only a handful of APON members who had written for publication. There were no specialty journals devoted to oncology, so members wrote for the American Journal of Nursing, Nursing ...
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40 Year Perspective on Late Effects and Survivorship by Wendy Landier Forty years ago, I was a senior nursing student, preparing to take my State Boards, and finishing up my clinical rotation in pediatrics. I have a vivid memory from that rotation of caring for a young boy with Wilms tumor my first pediatric oncology patient. Jack had recently undergone a nephrectomy and would soon be receiving chemotherapy. The mood in Jacks room was grim. His mother was tearful, his father was pacing back-and-forth across the cramped, dimly lit room, and Jack was whimpering in pain. I felt completely helpless, and was doing my best to hold back my ...
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Its Time to Advance Biobehavioral Research in Pediatric Oncology Nursing By Ki Moore & Marilyn Hockenberry Over the past 40 years, pediatric oncology nursing research has advanced knowledge about psychosocial responses to life-limiting illness, disease and treatment-related symptoms, decision making and informational needs across the illness trajectory, treatment-associated late effects, and end of life care. Findings from behavioral studies have illuminated the importance of supporting parents who frequently experience post-traumatic stress disorder and healthy siblings who struggle with the emotional trauma of their brothers or sisters cancer diagnosis. ...
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The Transformation of APHON Local Chapters This is my task at hand: write a blog about the local chapters—in 800 words. It seems like too many and not enough all at the same time. This might sound like a cliché, but the local chapters have a special place in my APHON heart. In 2001, the Chicago chapter of APON (before the “H”) was my introduction to this community of advocates, the beginnings of my leadership adventures, and the foundation for building a network of extremely talented professionals and friends. I am beyond amazed at the professional development opportunities I have had within the structure of the local chapter and the Local ...
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Evidence-Based Practice in Pediatric Hematology-Oncology Nursing Cheryl Rodgers & Marilyn Hockenberry Most nurses are aware of the inconsistencies that occur in clinical practice. Patients sometimes tell us, “That’s not how my nurse did it yesterday” or parents display frustration when they receive mixed messages about the care for their child. We often ask our colleagues about the best way to perform a task, or post questions on the open forum in APHON’s Member Connection to inquire about practices at different institutions. We can all appreciate the need to identify the best way to provide care for our patients and families. Evidence-based ...
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How Did an “H” Get Into APON? Changing Our Name to APHON As we reflect on the 40 years of our association’s history, many of the “older” members remember when we were APON and “newer” members might not even know that APHON started out as APON. So how did an “H” get into APON, turning us into APHON? In some ways it was because of a letter…. In the Spring of 2005, Mary Nelson (the editor of APON Counts at that time) received a “Letter to the Editor” from Eufemia Jacobs, PhD, RN, an APON member who mainly specialized in pediatric hematology. Eufemia’s letter posed this question: “Would APON, JOPON, and APON Counts consider adding ...
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Reflections on APHON's Beginnings By Gen Foley When I was interviewed for an article in JOPON in 1997 (Ruccione & Hinds, 1997), I was asked about being present as our specialty and APHON were developing. My response was that “I went to a meeting in Boston and met Trish (Greene), Andy (Wood), Shirley (Stagner), Dianne (Fochtman), and (I think probably) Lorraine Bivlack and June McCalla. It was the first time I met people I had only heard about and the thing that impressed me was how generous they were, how willing to share. Andy and Shirley were from St Jude Children’s Research Hospital which everybody knew was doing such important work with the leukemia ...
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"You've come a long way baby!" Those words ring true when I think of the changes in symptom management in APHON over the past 40 years. Unfortunately, the folks of my era know this slogan is associated with cigarettes, a product that I detest. Nevertheless, the words are apropos for my blog post. What has led to these advancements? I marvel at how communication changes have altered every aspect of our nursing care, and symptom management is no exception. I was not one of APON’s founding members, but APHON and I go back a long way, to 1987. I was flabbergasted when the FAX machine was introduced to our unit (please note: now facsimiles are the ...
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APHON is celebrating its 40 th Anniversary this year - what an achievement! To think, APHON originated from an impromptu meeting back in 1973 when four pediatric oncology nurses got together and shared practice problems and successes, knowledge and mutual support. We officially reached incorporation status in 1976. Today, 40 years later, we’re stronger than ever with almost 3,700 pediatric hematology/oncology nurses sharing best practices and supporting one another worldwide. Throughout the year, we will be marking our anniversary in different ways – through social media and at the Annual Conference (September 29-October 1, 2016) in Indianapolis, and through ...
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