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Evolution of advanced practice roles over the past 40 years by Deborah Lafond I guess you could say that my claim to fame is being the first pediatric oncology nurse in the United States Air Force. As a relatively new nurse, only a few years out of nursing school, I joined the Air Force to see the world and experience a different kind of nursing. Well, that wish surely came true. In those days, the Air Force could assign you a host of responsibilities that a typical bedside RN did not necessarily have the training to do. However, I worked with a dedicated pediatric oncologist who sent me to UCSF to train under the very capable supervision of Robin Kramer....
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The Evolution of Decision-Making and Consent/Assent during APHON's 40 Years by Kimberly Pyke-Grimm & Kathy Kelly Kim: It was in the early 90’s when I first began to work with my mentor Dr. Lesley Degner, PhD , RN, in Winnipeg, Manitoba (Canada) to study treatment decision-making (TDM) in pediatric oncology. Dr. Degner had conducted decision-making research for many years in adult oncology. Through her mentorship we conducted a study where we applied her control preferences construct to pediatric oncology. Little did I know decision-making would become my life’s work! I met Kathy Patterson Kelly at a Children’s Cancer Group (CCG)*...
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APHON: 40 Years of Nursing Education by Susie Burke Nursing education always has been – and remains – a key component of APHON’s mission, beginning in the 1970’s with informal gatherings of a few nurses who met to share their experiential knowledge and discuss ways to standardize care. This deep tradition of collaboration for education has carried forth to our current discussions as we gather together at conferences, during conference calls, through committee work, and at the bedside to outline what hematology/oncology nursing care looks like today. One of the highlights of my educational calendar is the Annual Conference, and I...
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APHON Count's Growth and Development: 40 Years Later by Kaye Scmidt APHON Counts has come a long way in 40 years! When I was asked to write this blog, I thought that although I am the current editor, I am not old enough to know the 40-year history of APHON Counts ! But then I started digging (with the help of the national office and some fellow APHON colleagues), and sadly, I was the one that came up with copies of the oldest APON counts that any of us could find! The oldest copy I found was from January 1994, and it was listed as Volume 8, Number 1. That would suggest that APON Counts may have originated in 1987! It also suggests...
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Reflections about JOPON’s evolution by Kristin Stegenga APHON’s 40 th anniversary has given me the opportunity to reflect and share a bit with my fellow members about how the Journal of Pediatric Oncology Nursing came to be. Ours is a pretty young specialty. It wasn’t until the early 80’s that Dianne Fochtman bravely stepped up as our founding editor. That wasn’t so very long ago and yet, all of the correspondence for the journal occurred via mail (the kind you send in the mailbox…). So you, as an author, would mail your manuscript to Dianne. She would read it and then send it out for review (another mailing…)...
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The APHON International Task Force began working informally in the mid-2000s. Initial members were Jill E. Brace O'Neill, Ayda Nambayan, Christina Baggott, Beth Sievers, Mary Yeaney, Sharon McNeil and Cheryl Claeys, and Joetta Wallace . Newer members include Jami Gattuso, Linda Abramovitz and Courtney Sullivan. In 2004, the Task Force conducted a national survey of APHON members and 75% stated they would like a breakout session at the annual conference on international pediatric oncology nursing. In 2005, two Central American nurses were supported by outside funders to attend the APHON conference. America Galindo from Guatemala City, Guatemala presented her...
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40 years of APHON Conferences by Melody Watral As we approach this remarkable milestone in our organization’s history, I was asked to think back on the first time I attended an APHON Conference and what has kept me coming back for “so many years.” Reviewing the APON/APHON Conference list, it appears that I have managed to attend for 19 of the last 25 years. Guess that makes me a “regular.” Here are some of my reflections back on several of the APHON Conferences I’ve attended: Boston, 1991 – My first APON Conference. I traveled with several of the other nurses I worked with at that time to see...
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APHON’s legislative advocacy by Jami Gattuso Happy 40 th Birthday APHON!! It’s amazing to me to think about how much change and growth we have seen in our organization over the decades….and it pleases me to think what changes we have to look forward to in the future! One area that has seen a tremendous amount of change is in the area of legislative advocacy. APHON currently has a truly solid strategic foundation and framework for legislative advocacy, but this has been a long time coming. A number of people have been pioneers along the way—slogging it out in the trenches alone. Those wonderful people are the workers I...
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APHON's Growth & Development by Casey Hooke I have a fascination with the wonder of growth and development. I think it is vital as pediatric hematology/oncology nurses that we are attuned to the developmental work that needs to be accomplished in childhood, whether the child has cancer or a blood disorder or is healthy. As I tell anyone who will listen: there are no “time outs” in development – so we need to support children in being successful in the work of childhood if we want them to become healthy adults. Thinking about APHON’s 40 th birthday, I considered some of the developmental theorists to see how our “age” fits with theory....
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The Story of the Purple Book by Gen Foley, Dianne Fochtman, Katherine Kelly, and Christina Baggott Gen: I write this blog as one of two editors who have guided, and written for, all four editions of THE BOOK. Only Dianne Fochtman and I experienced editions one and two, so that time frame is my blog focus. The Board decision to develop a textbook was bold, ambitious, and a leap of faith. In theory, the idea should never have worked. In the 1970's there were only a handful of APON members who had written for publication. There were no specialty journals devoted to oncology, so members wrote for the American Journal of Nursing, Nursing...
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40 Year Perspective on Late Effects and Survivorship by Wendy Landier Forty years ago, I was a senior nursing student, preparing to take my State Boards, and finishing up my clinical rotation in pediatrics. I have a vivid memory from that rotation of caring for a young boy with Wilms tumor – my first pediatric oncology patient. Jack had recently undergone a nephrectomy and would soon be receiving chemotherapy. The mood in Jack’s room was grim. His mother was tearful, his father was pacing back-and-forth across the cramped, dimly lit room, and Jack was whimpering in pain. I felt completely helpless, and was doing my best to...
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It’s Time to Advance Biobehavioral Research in Pediatric Oncology Nursing By Ki Moore & Marilyn Hockenberry Over the past 40 years, pediatric oncology nursing research has advanced knowledge about psychosocial responses to life-limiting illness, disease and treatment-related symptoms, decision making and informational needs across the illness trajectory, treatment-associated late effects, and end of life care. Findings from behavioral studies have illuminated the importance of supporting parents who frequently experience post-traumatic stress disorder and healthy siblings who struggle with the emotional trauma of their brother’s or...
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The Transformation of APHON Local Chapters This is my task at hand: write a blog about the local chapters—in 800 words. It seems like too many and not enough all at the same time. This might sound like a cliché, but the local chapters have a special place in my APHON heart. In 2001, the Chicago chapter of APON (before the “H”) was my introduction to this community of advocates, the beginnings of my leadership adventures, and the foundation for building a network of extremely talented professionals and friends. I am beyond amazed at the professional development opportunities I have had within the structure of the local chapter and the Local...
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Evidence-Based Practice in Pediatric Hematology-Oncology Nursing Cheryl Rodgers & Marilyn Hockenberry Most nurses are aware of the inconsistencies that occur in clinical practice. Patients sometimes tell us, “That’s not how my nurse did it yesterday” or parents display frustration when they receive mixed messages about the care for their child. We often ask our colleagues about the best way to perform a task, or post questions on the open forum in APHON’s Member Connection to inquire about practices at different institutions. We can all appreciate the need to identify the best way to provide care for our patients and families. ...
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How Did an “H” Get Into APON? Changing Our Name to APHON As we reflect on the 40 years of our association’s history, many of the “older” members remember when we were APON and “newer” members might not even know that APHON started out as APON. So how did an “H” get into APON, turning us into APHON? In some ways it was because of a letter…. In the Spring of 2005, Mary Nelson (the editor of APON Counts at that time) received a “Letter to the Editor” from Eufemia Jacobs, PhD, RN, an APON member who mainly specialized in pediatric hematology. Eufemia’s letter posed this question: “Would APON, JOPON, and APON Counts consider adding...
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Reflections on APHON's Beginnings By Gen Foley When I was interviewed for an article in JOPON in 1997 (Ruccione & Hinds, 1997), I was asked about being present as our specialty and APHON were developing. My response was that “I went to a meeting in Boston and met Trish (Greene), Andy (Wood), Shirley (Stagner), Dianne (Fochtman), and (I think probably) Lorraine Bivlack and June McCalla. It was the first time I met people I had only heard about and the thing that impressed me was how generous they were, how willing to share. Andy and Shirley were from St Jude Children’s Research Hospital which everybody knew was doing such important work with the...
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"You've come a long way baby!" Those words ring true when I think of the changes in symptom management in APHON over the past 40 years. Unfortunately, the folks of my era know this slogan is associated with cigarettes, a product that I detest. Nevertheless, the words are apropos for my blog post. What has led to these advancements? I marvel at how communication changes have altered every aspect of our nursing care, and symptom management is no exception. I was not one of APON’s founding members, but APHON and I go back a long way, to 1987. I was flabbergasted when the FAX machine was introduced to our unit (please note: now facsimiles are the...
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APHON is celebrating its 40 th Anniversary this year - what an achievement! To think, APHON originated from an impromptu meeting back in 1973 when four pediatric oncology nurses got together and shared practice problems and successes, knowledge and mutual support. We officially reached incorporation status in 1976. Today, 40 years later, we’re stronger than ever with almost 3,700 pediatric hematology/oncology nurses sharing best practices and supporting one another worldwide. Throughout the year, we will be marking our anniversary in different ways – through social media and at the Annual Conference (September 29-October 1, 2016) in Indianapolis, and through...
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As I continue my blog posts of technology resources, I'd like to share another free web-based tool: VoiceThread ( www.voicethread.com ). You can post nearly any medium: a set of PowerPoint slides, an image, a video then leave audio comments for each slide/image. You can further annotate by drawing on the image to bring home a particular point. You can then share it as widely as you like (with a single colleague, a group, or post to the world). Those who view your VoiceThread can comment back to you with questions or general comments. They can comment verbally by using their microphone, tablet, or phone, post a video comment with their webcam, or type in...
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First a note to a prior posting: I uploaded a video tutorial on how I search PubMed. I used it in my Writing for Publication Pre-Conference and had a few requests for the video. It can be found in the Library section of Member Connection. As I continue my blog of technology recommendations, I'd like to pass on the link to Animoto ( www.animoto.com ). This is a site where you can create videos in a matter of minutes. They are actually a set of photos set to music--to which you can add text. They have numerous templates to make the transitions between photos creative. They have thousands of songs in their library to use as background music--or you...
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